LDA is Proud to co-lead Project TENDR

Project TENDR Releases Consensus Statement about Toxic Chemicals and Brain Development

For the first time, leading scientists, medical experts, and health advocates have reached consensus that scientific evidence clearly shows toxic chemicals are contributing to neurodevelopmental disorders. On July 1 st , a consensus statement was published in EHPonline which outlines the risks and actions that can be taken.

This agreement among leading scientists and health experts would not have been possible ten years ago, but the research is now abundant and clearly shows that toxic chemicals are a serious threat to brain development.

TENDR is led by Co-Directors Maureen Swanson, leader of the Healthy Children Project of the Learning Disabilities Association of America and Irva Hertz-Picciotto, professor of epidemiology and environmental health at UC Davis Department of Public Health Sciences.

You can read the consensus statement, the recommendations, and who was involved as well as find out what you can do on the Project TENDR website at http://projecttendr.com/.

You can read the entire press release here: https://ldaamerica.org/project-tendr/

Unprecedented Alliance of Scientists, Health Professionals, and Advocates Agree Toxic Chemicals Hurting Brain Development

TENDR
MEDIA CONTACTS:

David Zucker, dzucker@hbbf.org, 917.617.0584

Jennifer Hazelton, Jennifer.hazelton@hbbf.org, 404.368.2533

Unprecedented Alliance of Scientists, Health Professionals,

& Advocates Agree Toxic Chemicals Hurting Brain

Project TENDR calls for immediate action to reduce toxic exposures in the environment.

New York, NY (July 1, 2016) – An unprecedented alliance of leading scientists, health professionals, and children’s health advocates agree for the first time that today’s scientific evidence supports a link between exposures to toxic chemicals in food, air and everyday products and children’s risks for neurodevelopmental disorders. The alliance, known as Project TENDR, is calling for immediate action to significantly reduce exposures to toxic chemicals to protect brain development for today’s and tomorrow’s children.

Neurodevelopmental disorders include intellectual disability, autism spectrum disorder, attention deficits, hyperactivity, and other maladaptive behaviors, and learning disabilities.   Project TENDR’s consensus statement can be found here.

Prime examples of the chemicals and pollutants that are contributing to children’s learning, intellectual and behavioral impairment include:

  • Organophosphate (OP) pesticides
  • Polybrominated diphenyl ether (PBDE) flame retardants
  • Combustion-related air pollutants, which generally include polycyclic aromatic hydrocarbons (PAHs), nitrogen dioxide and particulate matter
  • Lead
  • Mercury
  • Polychlorinated Biphenyls (PCBs)

“This is truly an historic agreement. Ten years ago, this consensus wouldn’t have been possible, but the scientific research is now abundantly clear: toxic chemicals are harming our children’s brain development,” said Irva Hertz-Picciotto, environmental epidemiologist at UC Davis and TENDR Co-Director. “As a society, we can eliminate or significantly lower these toxic chemical exposures and address inadequate regulatory systems that have allowed their proliferation. These steps can, in turn, reduce high rates of neurodevelopmental disorders.”

“This national problem is so pressing that the TENDR scientists and health professionals will continue their collaboration to develop and issue recommendations aimed at significantly reducing exposures to toxic chemicals that are harming children’s brain development,” says Maureen Swanson, with the Learning Disabilities Association of America and TENDR Co-Director. “Calling for further study is no longer a sufficient response to this threat.”

The following experts are available to answer reporters’ questions about Project TENDR’s findings via the telephone briefing at 11am ET on Friday, July 1 st .

Call-in Bridge: 1-800- 215-0618; Access Code: 337-8044

Participants:

Dr. Irva Hertz-Picciotto is Professor of Epidemiology and of Environmental Health in the Department of Public Health Sciences and the MIND Institute at UC Davis, and Director of the NIH-funded Environmental Health Sciences Core Center. She is co-founder and co-director of Project TENDR.

Mark Mitchell M.D., MPH, FACPM is the principal of Mitchell Environmental Health Associates, a consulting firm on environmental health and environmental justice issues. He chairs the National Medical Association’s Council on Medical Legislation and co-chairs the NMA’s Commission on Environmental Health, which trains and coordinates advocacy on behalf of African American physicians and their patients.

Frederica P. Perera, DrPH, PhD, is a Professor of Environmental Health Sciences and serves as the Director of the Columbia Center for Children’s Environmental Health.

Maureen H. Swanson is Director of the Healthy Children Project of the Learning Disabilities Association of America (LDA), focused on raising awareness of environmental factors linked to learning and developmental disabilities, and on promoting policies and practices to reduce toxic chemical exposures, especially for pregnant women and children. She is co-founder and co-director of Project TENDR.

About Project TENDR:

Project TENDR, which stands for “Targeting Environmental Neuro-Developmental Risks,” is an alliance of 48 of the nation’s top scientists, health professionals, and health advocates (See Author List). It was launched by Maureen Swanson of the Learning Disabilities Association of American and Irva Hertz-Picciotto of UC Davis, who brought together participants across many disciplines and sectors, including epidemiology, toxicology, exposure science, pediatrics, obstetrics and gynecology, nursing, public health, and federal and state chemical policy. Medical and scientific societies that have signed on in support include American Congress of Obstetricians and Gynecologists, American Nurses Association, Endocrine Society, National Association of Pediatric Nurse Practitioners, National Medical Association, National Hispanic Medical Association, Alliance of Nurses for Healthy Environments, Physicians for Social Responsibility and the National Council of Asian Pacific Island Physicians. TENDR’s long-term mission is to lower the incidence of neurodevelopmental disorders by reducing exposure levels to chemicals and pollutants that can contribute to these conditions, especially during fetal development and early childhood. More information about Project TENDR can be found here.

The PDF to this Press Release can be downloaded here.

LDA Comments on the Notice of Proposed Rulemaking

LDA has responded to the U.S. Department of Education’s proposed regulations on significant disproportionality. The Department proposed a complicated uniform mathematical calculation and expanded use of “early intervening” funds for pre-K and students with disabilities. After much consideration, LDA opposed the adoption of a uniform methodology, noting that any “formula” for calculating significant disproportionality of racial and ethnic groups in special education must be flexible and account for the broader variables that may contribute to the overrepresentation.

Read LDA’s Response

Outstanding Educator Recognized by Learning Disabilities Organization

FOR IMMEDIATE RELEASE CONTACT:

April 19, 2016

Mary-Clare Reynolds, Executive Director

412-341-1515, ext. 206

mcreynolds@ldaamerica.org

 

Outstanding Educator Recognized by Learning Disabilities Organization

The Learning Disabilities Association of America (LDA), a premier source of information, support and advocacy for parents, teachers and individuals, recognized Nancy Hammill of Cherry Hill, NJ as the 2016 Sam Kirk Award recipient at its recent international conference in Orlando.

The Sam Kirk Award is given each year to an outstanding educator who has made a difference in the lives of individuals with learning disabilities and in the field of special education. The award is named in honor of Dr. Samuel A. Kirk, psychologist, scholar, humanitarian and pioneer in the field of learning disabilities. Dr. Kirk is often given credit for coining the term Learning Disabilities.

Nancy is a Learning Therapist and Professional Development and Outreach Coordinator, for the Cooper Learning Center, Pediatric Department of Cooper University Hospital. She received her Master of Science in Education from Bank Street Graduate College of Education in New York and has worked more than 20 years in public and private school systems in both suburban and urban settings. Nancy considers helping students thrive to be a personal calling. As a person with learning disabilities herself, she knows the impact learning differences can have on someone’s self-esteem. Her mission is to have her students achieve academic success and learn to appreciate themselves and their uniqueness as individuals.

Nancy has been active in working with LDA of New Jersey (LDANJ), focusing on bringing community awareness to best practices for people with learning disabilities in and out of the classroom. Most recently she presented a workshop for teachers at the 2015 LDANJ conference entitled The “Write” Strategies for Improving Writing Skills for Struggling Students. Her training and expertise covers the areas of corrective reading, reading comprehension, reading fluency, written expression, executive functioning and self- regulation.

Other nominees, who received Honorable Mention, were Julianne Alvarado from Illinois, Annette Lalley from Michigan, and Tobey Bullington from Oklahoma.

LDA is a non-profit organization of parents, professionals and adults with learning disabilities providing support, information, and advocacy on behalf of individuals with learning disabilities. For further information go to www.ldaamerica.org.

LDA takes Action on Flint Crisis

One of the main reasons individuals join LDA is its strong advocacy for the health, safety, and education of children. When LDA learned of the dire situation with the water supply in Flint, Michigan, and the serious effects of high lead levels on children, a workgroup of LDA members sprang into action to support families in that community.

Members of the LDA Public Policy Committee and the Professional Advisory Board (PAB) joined together to compose a letter (click here to see the letter) that has been sent to national news media including the New York Times, Washington Post, and the Rachel Maddow Show (MSNBC), and local and State media outlets in Michigan such as the Detroit Free Press and the Flint Journal. Members in Michigan also reached out to the Michigan Department of Education and are working with the Michigan Healthy Children Project. Maureen Swanson, director of the LDA Healthy Children Project, and PAB chair neuropsychologist Jerry Schultz provided expert information to the workgroup on the effects of high lead levels on children’s growth and development.

The letter makes clear the immediate priority must be testing and treating children for lead poisoning, but notes also these actions are just first steps in addressing a problem of this magnitude. Evidence clearly links high lead levels with increased incidence of learning disabilities and/or neurological impairments. Therefore, a long-term plan must be in place to prevent this type of catastrophe from being repeated elsewhere.

LDA recommends a long-term plan include the following:

  • Periodic assessment of all two to four year olds testing positive for lead poisoning for early warning signs of learning disabilities and/or neurological impairments, and if necessary, providing early intervention services at school and at home.
  • Comprehensive evaluation of all seven-year-olds testing positive for lead poisoning, including a cognitive assessment to identify specific problem areas.
  • Assignment of a special education advocate or parent trainer to work with families of all children testing positive for lead poisoning to ensure appropriate services from the Flint school district.
  • Recognition by the State of Michigan that many of the children identified with neurological impairments resulting from lead poisoning will need continued supports into and through adulthood.

LDA understands that Flint is an extreme example of a problem that exists in many cities and towns across the country. A key component of the LDA mission and vision is to reduce the incidence of learning disabilities for future generations. LDA actions to prevent situations like the one in Flint will help make this vision a reality.

View the letter in it’s entirety here.

Educators, Professionals, Parents and Individuals gather at LDA’s National Conference in Orlando

February 10, 2016

FOR IMMEDIATE RELEASE CONTACT:
Mary-Clare Reynolds, Executive Director
412-341-1515, ext. 206
mcreynolds@ldaamerica.org

53rd Annual Learning Disabilities Association of America Conference in Orlando to address current issues such as employment, technology, and education as they relate to individuals with learning disabilities

Educators, Professionals, Parents and Individuals gather at national conference.

Assistive technology, diversity and other timely topics will be featured at the 53rd annual international conference of the Learning Disabilities Association of America (LDA) at the World Center Marriott, Orlando, FL, February 15-18, 2016.

This conference attracts educators, administrators, support professionals, parents and adults with learning disabilities from around the country as well as from other countries to take a comprehensive look at issues and best practices in professional preparation and evaluation; advances in research, assessment for learning disabilities, and the transition from school to work or college.

The four-day conference includes 200 breakout sessions and workshops featuring leading experts in education, assistive technology, research, mental health, classroom techniques, public policy, advocacy, juvenile justice and much more.
Keynote sessions include “You Built It! Celebrating 53 Years’ presented by Lisa Dieker, Ph.D., Pegasus Professor, Lockheed Martin Eminent Scholar, University of Central Florida; “Two Reasons Why Many Students with Disabilities are Failing School and Why RTI Hasn’t Helped Them’ presented by Doug Fuchs, Ph.D., Nicholas Hobbs Chair in Special Education and Human Development, Department of Special Education, Peabody College of Vanderbilt University; and “What Makes Online Learning Work (or Not Work) for Students with LD” presented by Don Deshler, Ph.D., and Sean Smith, Ph.D., Department of Special Education, University of Kansas.

Kayla Wilson shares her moving story, “The Elephant in the Room: Trying to Hide my LD, but Knowing It was Always There’ during Tuesday’s Adult Luncheon. The Thursday Awards Breakfast spotlights David Bowker, Director of the Office of Future Engineers, Purdue University, who asks the question “Is Everybody Special?”

LDA is a non-profit organization of parents, educators, adults with learning disabilities and professionals providing support, information, and advocacy on behalf of individuals with learning disabilities.

For further information go to www.ldaamerica.org/conference/index.asp

LDA Takes a Stand on Flint, Michigan Water Situation

January 27, 2016

Letter to the Editor

Dear Editor:

The Learning Disabilities Association of America (LDA) shares the distress of parents and professionals across the country over the situation in Flint, Michigan. The damage that has been done, and will continue to be done, by the contaminated water supply of Flint, is of immediate concern.

Given the urgency surrounding the children diagnosed with elevated lead levels from the drinking water in Flint, Michigan and our long-time interest in the effects of toxins on children and pregnant women, LDA would like to share information about the relationship between lead exposure and learning disabilities.

A fresh water supply with high levels of lead can cause neurological damage leading to learning disabilities, lowered IQs, and behavioral problems. Scientists agree that there is no safe level of lead exposure for children. Recent studies show that learning and behavior deficits occur in children even at very low levels of lead exposure, and that these deficits persist. In addition to learning disabilities, lead exposure can cause intellectual impairment, attention deficit hyperactivity disorder (ADHD), and behavior problems. According to LDA’s Healthy Children Project, scientists link low levels of lead exposure in toddlers to declines in math and reading test scores when the children reach elementary school.

A learning disability is a neurological condition that interferes with an individual’s ability to store, process, or produce information. Learning disabilities can affect one’s ability to read, write, speak, spell, compute math, reason and also affect an individual’s attention, memory, coordination, social skills and emotional maturity.

Learning disabilities will differ from child to child and person to person. They will not all look and act the same. For example, some students will have difficulty learning to read, others will struggle with math, some people may misinterpret or have difficulty remembering oral directions, and others may have trouble interpreting nonverbal cues like facial expressions or body language.

It’s clear that the most immediate priority is the health of the children. Testing for lead poisoning and, if needed, the removal of lead from their bodies is the absolute first priority. However, the State of Michigan and the City of Flint must recognize that this is only the first step on the long road to mitigating the impact of this problem. As stated previously, evidence strongly suggests that many of these children will have some form of a learning disability and/or neurological impairment (LD/NI). Therefore, the Learning Disabilities Association of America is strongly recommending that any intermediate and long-term plan dealing with this health crisis needs to contain the following:

1. 100 % of all two to four-year-old children testing positive for lead poisoning be periodically assessed for the early warning signs of a possible LD/NI and, if warranted, be provided with early intervention services at school and in the home.

● Scientific evidence suggests that early intervention services for children ages 7 and under can significantly reduce the long term impact of a LD/NI.

2. 100% of all seven-year-old children testing positive for lead poisoning be given a comprehensive evaluation that includes a cognitive assessment in order to identify specific problem areas that the individual child may have.

● The impact of a learning disability is unique to each child. A cognitive assessment is the only way to identify the problem areas that are specific to each individual child.

3. 100% of all children testing positive for lead poisoning be assigned a special education advocate/ parent trainer to work with the families in order to secure the right services at the right time from the Flint, Michigan School District.

● School districts tend to provide the least amount of services needed following the identification of a child with LD/NI and, as time goes by, subsequently increase services if needed.

● LDA firmly believes that school districts should provide the appropriate amount of services from the beginning and make small incremental adjustments moving forward.

● The role of the special education advocate is to represent the best interests of the child.

● Having a child with a disability is a traumatic event and can result in significant disruption in the home. Parent trainers work with families to help reduce and/or possibly eliminate the disruptions.

4. Finally, recognition by the State of Michigan that many of the children identified with neurological impairments as a result of lead poisoning will need an on-going system of supports as adults. While the impact of the impairment may be lessened, the impairment will last a lifetime.

● Individuals with LD/NI drop out of high school at a significantly higher rate than their non-disabled peers.

This needs to be a long-term commitment because learning disabilities do not go away.

As an organization that has worked for over 50 years with families of children diagnosed with learning disabilities, the Learning Disabilities Association of America can offer information about types of learning disabilities and early signs, assessment and evaluation to identify learning disabilities, special education services, legislation, advocacy, issues faced by adults with LD, and other resources. We invite you to visit our website at LDAAmerica.org.

Sincerely yours,

Mary-Clare Reynolds

Executive Director

Learning Disabilities Association of America

LDA Mourns the Loss of President Nancie Payne

Nancie Payne, LDA President

It is with a very heavy heart that LDA announces the passing of our President and fearless leader, Nancie Payne. Nancie, who would have finished up her two-year term as President during our Orlando Conference next month, died December 27th after a courageous six-year battle with cancer.

Over the years, Nancie served at various levels in LDA, including being a member of the Professional Advisory Board, as well as serving on several committees such as Adult Topics (Chair), Conference Program (Chair twice), Finance (Chair), and Support Services. She also served on the Board of the LDA of Washington state affiliate. She embodied professionalism and came to LDA with the sole agenda to improve the lives of individuals with learning disabilities. Nancie, who herself had learning disabilities, was a sought after speaker and professional development trainer across the United States and Canada in the field of adult special needs learning.

Nancie’s professional experience involved workforce, welfare, education and rehabilitation. She was founder and president of Payne & Associates, a full-service learning center which assisted children and adults with learning and other cognitive disabilities. She was involved in other organizations outside LDA including Commission on Adult Basic Education (COABE), Washington State Business Leadership Network, Pacific Mountain Workforce Development Council, and the Thurston County Economic Development Council. Nancie brought her deep insight and knowledge to LDA. I had the great pleasure of knowing Nancie for nearly 20 years and I know one thing to be true … her legacy will live on in the heart of LDA.

As mandated by our bylaws, First Vice President Allen Broyles succeeds Nancie as LDA’s new President. Allen is the Assistant Head of School and Middle School Principal of The Howard School, a K-12 school for students with language-based learning differences in Atlanta.  Allen has served on LDA’s Board of Directors, Executive Committee and various other committees including Adult Topics, Development, and Marketing/Communications.

Warm regards,
Mary-Clare Reynolds
Executive Director, LDA

What is the next step for my son?

arlynn
Arlyn Roffman, Professor Emeritus Lesley University

Question:

My son had an IEP in school, passed the state testing and completed all of his high school credits. We requested for him to stay another year in school for social and pragmatic issues. However, the school graduated him after repeated requests by my son, his therapist and myself to hold him back. What is the next step?

Answer:

I’m afraid this is a scenario that occurs all too often. Many higher-functioning students in special education are able to pass their state’s test and earn the credits required for graduation, yet are not ready to transition into either work or further schooling.

Under IDEA 2004, districts are required to include appropriate transition planning based upon ongoing assessment in IEPs starting at age 16 (age varies by state). The Quabbin case in Massachusetts established that fulfillment of those graduation requirements is insufficient for graduating students whose IEP goals and objectives have not been met. Further, in the landmark Dracut case, the Hearing Officer stated, “…mere academic success is not enough, when other deficits will likely preclude a student from functioning effectively in a post-secondary environment, whether in the community, in college, or when interacting with social and workplace peers.” In that case, the court required the school to provide compensatory services, even after graduation.

I recommend contacting a lawyer about your situation. With appropriate transition services, your son will have greater potential for a satisfying and productive adult life.

Dr. Arlyn Roffman | Professor Emeritus | Lesley University

Dr. Roffman taught at Lesley beginning in 1976, working most her time here with graduate students in special education. The exception was a 15-year period beginning in 1981, when she founded the Threshold Program and served as director of this comprehensive transition program for young adults with significant learning problems, the first of its kind in the nation based on a college campus. Returning to a faculty role in 1996 allowed her to write two more books and numerous other publications related to transition and to present and consult extensively on this topic throughout the US and abroad. In 2011 the Learning Disabilities Association of America presented Dr. Roffman with the LDA Award, its highest honor. She has served on a number of national boards related to individuals with disabilities and very much enjoys teaching and mentoring new teachers. Dr. Roffman is also a licensed psychologist and maintains a small practice serving adults with disabilities.

I’m ashamed of failing!

Nancie Payne, Ph.D.
Nancie Payne, Ph.D.

Question:

I am an adult and I struggle with what I feel is a learning disability. I have always struggled with learning math, even though I always liked it. I also have trouble comprehending and retaining things long term especially since I’ve gotten older. Even though I have had pretty decent jobs for someone with my educational background, I have had lots of failure as well. I also have four children, who all struggle with math and I want to be able to help them with their homework. I feel as of now that my math level is behind theirs. I want to attend the GED classes offered, but am too ashamed of failing or showing that a high school graduate has a 7th grade math level. Please help me so that I can help my kids. Thanks!

Answer:

Thank you for sharing a little of your story. I can tell you have had your trials throughout your life and yet, think about how smart you are! Yes – smart… You are very much aware that you want to help your children so they do not encounter the same things you have – that to me is smart thinking.

Please try going to the GED classes – the reason is you will see that many in the program have a variety of difficulties and struggle with one thing or another just as you have described – some with reading and comprehension, some with writing and some with math. The purpose of adult education and GED programs is to assist you in ways you have probably not been assisted before… so at least call and see if you can make an appointment with the instructor before the class or after the class – that way you can share a little and see whether it’s the right place for you.

Another program that may be available is a family literacy program where you and your children can go together and learn Math as a family. Ask the adult education/GED instructor about whether there is a program in your area and whether you can get in.

Finally, there are volunteer literacy tutors who come to your home (or you meet in the library, etc.) and will work will you on the math area. You should be able to access some assistance for your children as well from their school-programs. Each school is supposed to have some tutorial and remedial assistance for children who are not performing as well as they should be.

I hope this information is helpful. Thank you for contacting LDA.

Nancie Payne, Ph.D. | President/CEO | Payne & Associates, Inc.

Dr. Payne is the President/CEO of Payne & Associates, Inc. She provides education, training and employment services and supports to adolescents and adults who have cognitive, non-apparent disabilities. She, also, provides professional development and consultation to businesses and organizations. Currently, Dr. Payne is serving as President of the Learning Disabilities Association of America, 2014-16.